A message for my friends with chronic illnessesRead More
(How a celebrity body-shaming piece led me to write this article).
In "The Marvelous Transformation: Living Well With Autoimmune Disease," I write about taking back control of our body image even when chronic illness continues to damage it. I ran across one of these body shaming articles this morning, directed at celebrities and the "worst examples" of aging and I got angry.Read More
Chronic illness can steal everything from a person. The ability to: move freely through the world, sleep, have a career, pursue their dreams, the chance to live pain-free, and the opportunity to have an active life.
People with chronic illness are not sheltered from reality. They know their lives have made a dramatic shift: The majority of them had full, happy, lives, prior to becoming sick. That means they are mourning much of the life they unwillingly lost, including the friends that decided it was too much work to maintain a friendship. I teach people to concentrate on the positives in their lives; to practice gratitude for the friendships that have survived because those people are their true friends.Read More
OCTOBER 10, 2015 - Come meet Emily and learn about all of her books!Read More
If you could give up your disease, would you? The answer seems obvious doesn't it? "Of course I would," you may be thinking, but I'm not so sure, myself.Read More
If you had seen me 10 months ago you might have mistaken me for a skinny girl. At 5’3 (on a good day) and 130 pounds, I had narrow hips, hollow cheeks, a defined chin and neck, thin arms, and my legs didn’t rub together when I walked. My stomach didn’t protrude and my clothes glided over my body. I could fold myself into a chair the way you are “supposed” to and I had a long neck and cute little crinkles in the corners of my eyes and mouth when I smiled. But...you would have been mistaken.
Written with Jerry Williams
Living with Myositis is hard. Let’s just put out the truth and give light to the darkness:
- Maybe you don’t feel well, although you can’t put your finger on why so you feel frustrated.
- You can’t do the same things you could do ten years ago, one year ago, maybe even yesterday and it makes you angry.
- You can’t lift your children, the groceries, or even a backpack/purse and you feel helpless.
- You miss out on family activities due to fatigue and you feel alone.
- Someone says “You don’t look sick to me,” and you feel doubted.
- You have so much pain sometimes that you wonder if fighting is worth it, and you feel like giving up.
Intense, disturbing, honest, and emotionally wrought – the words I would use to describe Jennifer Aniston’s most recent performance. Cake, for perhaps the first time in my movie-going experience, took me to a place so visceral, yet uncontrived, that I felt she understood my life…maybe even had seen me in some of my darkest hours.Read More
How many times have you found that you were viewing yourself as, predominantly, a person with a disease? Have you ever forgotten that you are a multi-faceted human being with talents, interests, desires, and abilities? How can we prevent ourselves from losing our identities when it seems our lives revolve around doctor appointments, pharmacy trips, limitations, breaks, fatigue, pain, helplessness, and relying on others for assistance?Read More
Aquatic therapy has taught me a lot, aside from its obvious benefits of improved strength and flexibility. I have also learned about my ability to adapt to the limitations of my body.
How can Aquatic Therapy do that? It began in a very subtle way. My PT is very observant and began pointing out the “cheats” I have developed over the years for my physical weakness.Read More