(How a celebrity body-shaming piece led me to write this article).
In "The Marvelous Transformation: Living Well With Autoimmune Disease," I write about taking back control of our body image even when chronic illness continues to damage it. I ran across one of these body shaming articles this morning, directed at celebrities and the "worst examples" of aging and I got angry. Read more
Chronic illness can steal everything from a person. The ability to: move freely through the world, sleep, have a career, pursue their dreams, the chance to live pain-free, and the opportunity to have an active life.
People with chronic illness are not sheltered from reality. They know their lives have made a dramatic shift: The majority of them had full, happy, lives, prior to becoming sick. That means they are mourning much of the life they unwillingly lost, including the friends that decided it was too much work to maintain a friendship. I teach people to concentrate on the positives in their lives; to practice gratitude for the friendships that have survived because those people are their true friends. Read more
It’s too dark! The walls are closing in! I can’t breathe! I can’t sit still! Get me outta here! These are the thoughts I expected to have when I encountered my first F.LO.A.T. last night because I have lived most of my life with claustrophobia. Read more
Instead, I found the warm embrace of perfectly calibrated water, warm and silky to the touch, buoyant (even more than I had imagined), and a feeling of complete safety.
EMILY A. FILMORE WITH JERRY WILLIAMS AND PAT VITACCO
SEPTEMBER 11, 2015
They write books and articles, they write blogs, they manage web sites and Facebook pages. Some simply keep a journal. Several myositis patients who have found it helpful to write about their experience will explain why they do it and how you can find insight as well as direction by writing it all down. Read more