The following are the comments I gave to a support group about my book, The Marvelous Transformation: Living Well with Autoimmune Disease and how one can use the messages within it to deal with the mild, acute, hopelessness, sadness, and even depression that sometimes results from flares of chronic illnesses like myositis.Read more
A message for my friends with chronic illnessesRead more
Chronic illness can steal everything from a person. The ability to: move freely through the world, sleep, have a career, pursue their dreams, the chance to live pain-free, and the opportunity to have an active life.
People with chronic illness are not sheltered from reality. They know their lives have made a dramatic shift: The majority of them had full, happy, lives, prior to becoming sick. That means they are mourning much of the life they unwillingly lost, including the friends that decided it was too much work to maintain a friendship. I teach people to concentrate on the positives in their lives; to practice gratitude for the friendships that have survived because those people are their true friends.Read more
Written with Jerry Williams
Living with Myositis is hard. Let’s just put out the truth and give light to the darkness:
- Maybe you don’t feel well, although you can’t put your finger on why so you feel frustrated.
- You can’t do the same things you could do ten years ago, one year ago, maybe even yesterday and it makes you angry.
- You can’t lift your children, the groceries, or even a backpack/purse and you feel helpless.
- You miss out on family activities due to fatigue and you feel alone.
- Someone says “You don’t look sick to me,” and you feel doubted.
- You have so much pain sometimes that you wonder if fighting is worth it, and you feel like giving up.