A message for my friends with chronic illnessesRead more
(How a celebrity body-shaming piece led me to write this article).
In "The Marvelous Transformation: Living Well With Autoimmune Disease," I write about taking back control of our body image even when chronic illness continues to damage it. I ran across one of these body shaming articles this morning, directed at celebrities and the "worst examples" of aging and I got angry.Read more
Chronic illness can steal everything from a person. The ability to: move freely through the world, sleep, have a career, pursue their dreams, the chance to live pain-free, and the opportunity to have an active life.
People with chronic illness are not sheltered from reality. They know their lives have made a dramatic shift: The majority of them had full, happy, lives, prior to becoming sick. That means they are mourning much of the life they unwillingly lost, including the friends that decided it was too much work to maintain a friendship. I teach people to concentrate on the positives in their lives; to practice gratitude for the friendships that have survived because those people are their true friends.Read more
Maintaining a positive attitude is my goal each day when I awake. I generally do a pretty good job of living well despite my chronic diseases; but I am a fallible human being with emotions and physical sensations. I experience stress, sadness, anger, and helplessness just like you. I have a wonderful support system and many coping strategies at my disposal, so I can usually get through any situation. Recently, though, I took the step of finally applying for Social Security Disability and boy has it knocked the wind out of me.Read more
Written with Jerry Williams
Living with Myositis is hard. Let’s just put out the truth and give light to the darkness:
- Maybe you don’t feel well, although you can’t put your finger on why so you feel frustrated.
- You can’t do the same things you could do ten years ago, one year ago, maybe even yesterday and it makes you angry.
- You can’t lift your children, the groceries, or even a backpack/purse and you feel helpless.
- You miss out on family activities due to fatigue and you feel alone.
- Someone says “You don’t look sick to me,” and you feel doubted.
- You have so much pain sometimes that you wonder if fighting is worth it, and you feel like giving up.