The following are the comments I gave to a support group about my book, The Marvelous Transformation: Living Well with Autoimmune Disease and how one can use the messages within it to deal with the mild, acute, hopelessness, sadness, and even depression that sometimes results from flares of chronic illnesses like myositis.Read more
Over the next few weeks I'm going to explore the issues as presented by the candidates for president through the lens of conscious and spiritual living. Since many of my fans have illness and/or disability in common I thought I'd start with that.Read more
A message for my friends with chronic illnessesRead more
By Scott and Emily Filmore
A recurring topic of conversation in health support groups is the difficulty spouses, partners, parents, siblings, children, or friends of people with chronic illness show in understanding and accepting the realities of their loved ones’ health situations. This is often compounded for people with the so-called invisible diseases such as myositis, fibromyalgia, MS, chronic migraines, and other autoimmune diseases because no matter how bad patients feel on the inside, no matter how weak their muscles, no matter how much fatigue they struggle with, they often look normal to the outside world....
...Scott Filmore, Emily’s partner of thirteen years, weighs in on what he does to help create a successful marriage even as they face the daily struggles of her multiple health issues.Read more
Chronic illness can steal everything from a person. The ability to: move freely through the world, sleep, have a career, pursue their dreams, the chance to live pain-free, and the opportunity to have an active life.
People with chronic illness are not sheltered from reality. They know their lives have made a dramatic shift: The majority of them had full, happy, lives, prior to becoming sick. That means they are mourning much of the life they unwillingly lost, including the friends that decided it was too much work to maintain a friendship. I teach people to concentrate on the positives in their lives; to practice gratitude for the friendships that have survived because those people are their true friends.Read more
EMILY A. FILMORE WITH JERRY WILLIAMS AND PAT VITACCO
SEPTEMBER 11, 2015
They write books and articles, they write blogs, they manage web sites and Facebook pages. Some simply keep a journal. Several myositis patients who have found it helpful to write about their experience will explain why they do it and how you can find insight as well as direction by writing it all down.Read more
Intense, disturbing, honest, and emotionally wrought – the words I would use to describe Jennifer Aniston’s most recent performance. Cake, for perhaps the first time in my movie-going experience, took me to a place so visceral, yet uncontrived, that I felt she understood my life…maybe even had seen me in some of my darkest hours.Read more