Powerful by Empire (ft. Alicia Keys and Jussie Smollett) should be every family's anthem

I wish every child would know, feel and believe the power of the words of this song to their core.

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Unexpected Benefits of Writing about My Autoimmune Disease

Benefits of authentic writing:

Can’t hide from your truth

A great outlet, Get your emotions out

Explore details you may have missed

Seeing the sum total of your experience, good and bad, puts it into perspective

Sharing and helping others gives you purpose

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WITH MY CHILD: AN ALTERNATIVE PARENTING AND EDUCATION GATHERING NOV. 14, 2015

NOVEMBER 14, 2015

On November 14, 2015, Emily and Beautiful Day Publishing present With My Child: An Alternative Parenting and Education Gathering at F.LO.A.T. in cooperation with Rest BodyworkGood4theSol, and Scott Filmore, Esq. Come join us for a multidimensional parenting workshop. More details coming soon.

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EMILY SPEAKING IN DECEMBER 2015 IN LONG BEACH, CA

Emily is honored to announce that she will be joining Neale Donald Walsch, Laurie Lankins Farley, Mallika Chopra, Ellie Knaus, Bianca Kajlich AtomicMoms, Suzi Kesler Lula & Susan Stiffelman at Dr. Shefali's 3-Day Parenting Intensive Workshop in December (12/4-12/6). You may know Dr. Shefali from her appearances on Oprah's OWN Network!

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PRESS RELEASE BY CENTRAL RECOVERY PRESS

Myositis Awareness Day

Creating awareness of a rare disease such as myositis is vital to not just informing the public of the disease but to also help myositis patients find resources they can call upon to help them cope with their disease. The Myositis Association (TMA) had the US Congress designate September 21 as Myositis Awareness Day, and Central Recovery Press encourages support groups to use this landmark day to draw attention to the disease and the help that is available for those living with myositis, as well as for the those who are the caregivers of a myositis patient.

The Marvelous Transformation by Emily Filmore

More than eighty health conditions are caused by autoimmune disease, the American Autoimmune Related Diseases Association (AARDA) estimates that fifty million Americans have an autoimmune disease. However, myositis has much lower numbers and is classified as a “Rare Disease” by  National Organization for Rare Disorders (NORD).

Myositis is the umbrella name for dermatomyositis, polymyositis, inclusion body myositis, and juvenile myositis. These chronic diseases are dangerously undiagnosed, under-treated, and misunderstood. Often the people suffering from them are dismissed and minimalized by the doctors in charge of their care because of a lack of knowledge due to the disease’s rarity. It is vitally important for patients to get prompt, appropriate, and competent medical testing and care. Patients must also learn to advocate for themselves and develop coping mechanisms to live well within their new normal.

The Marvelous Transformation is a great resource to share with medical practitioners and family members to show a real-world account of what it is like for patients living with myositis. It also provides patients with practical information and strategies to ease physical, spiritual, mental, and emotional discomfort. Emily Filmore discusses her twenty years of disease experiences, including the struggle to get diagnosed, the daily truths of living with myositis, importance of a strong support system, and lack of clear and effective treatment regimens. She recounts her voyage of heartache and triumph through therapeutic relationships with approximately twenty doctors, innumerable medical tests, surgeries, procedures, medications, and alternative health modalities.

Emily has shown that a chronic illness doesn’t have to lead to chronic unhappiness. She empowers her readers to take control of their own realities by advocating for themselves for proper care, practicing moments of gratitude, finding the gifts in a negative situation, and providing specific tips for how to transform their own lives.

Emily Filmore serves on the Board of Directors of Myositis Support and Understanding Association, Inc. a new nonprofit started by patients for patients. More information about Emily and her book can be found at emilyfilmore.com and centralrecoverypress.com.

http://centralrecovery.mailerlite.com/a8u7p8/9062386718/j3d5/

SHARING YOUR MYOSITIS JOURNEY: PRESENTED AT THE MYOSITIS ASSOCIATION'S ANNUAL PATIENT CONFERENCE

EMILY A. FILMORE WITH JERRY WILLIAMS AND PAT VITACCO

SEPTEMBER 11, 2015

Description:

They write books and articles, they write blogs, they manage web sites and Facebook pages. Some simply keep a journal. Several myositis patients who have found it helpful to write about their experience will explain why they do it and how you can find insight as well as direction by writing it all down. 

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